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The Executive Board of Watch 4 Wegeners
Fighting For Change

Molly Whitmire


Molly became passionate to  increase awareness about Wegener's disease after losing her 20 year old daughter, Sarah "River," to undiagnosed Wegener's in 2021.  Molly fights to make sure no family ever again loses a loved one to undiagnosed Wegener's.

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Matthew Kramer-LaPadula

Technical & Brand Advisor

Matthew James Kramer-LaPadula received his M.S. in Pure Mathematics from Lehigh University. While working on his Ph.D., he became an Applied Research Mathematician with the National Security Agency. ​Matt has taught at Cedar Crest College, Johns Hopkins Center for Talented Youth, and Lehigh University. He has been an IT professional and developer for almost 15 years and has been pursuing graphic design for almost as long.​ After working for several years at Google full-time as a Software Engineer, he returned to creative work. In his spare time, he enjoys creating music and writing short form.​


Amanda Schwarcz

Vice President

My mission is to make everyone aware of this deadly disease so that no one else has to go misdiagnosed and possibly lose a life.

See Amanda's story in the  "Please Tell Us Your Story" section. 

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Jamie Whitmire


Jamie is committed to ensuring that no families experience losing someone to undiagnosed Wegener's Disease. He is passionate to provide education to the public and clinicians through the story of the loss of his daughter Sarah.

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Jean Sampson


My sincere hope is to bring awareness of this disease to the medical community, so that this condition is more easily diagnosed. Early diagnosis is key to  preventing more serious illness. 

Executive Board
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